A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations ...

The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to ...

I felt emotionally and physically unprepared to navigate my daughter’s cystic fibrosis diagnosis while managing my mental health. However, connecting with other families in the CF community, along ...

I was diagnosed with cystic fibrosis-related liver cirrhosis in 2004 at the age of 9. Growing up, my disease wasn’t something to be pitied or seen as a weakness. It was a strength. I had the mentality ...

The Paul di Sant’Agnese Legacy Society is a group of Cystic Fibrosis Foundation supporters who have made a lasting commitment by making a legacy gift. It is a special way for us to honor your gift, ...

Despite its prevalence and impact, there is no CF-specific guidance for the assessment and management of pain. The Cystic Fibrosis Foundation assembled an expert panel of clinicians, researchers, ...

Living with cystic fibrosis demands a complex regimen of care and treatment. Across the U.S., managing this care involves navigating a maze of health insurance coverage and significant out-of-pocket ...

This blog discusses suicide and suicidal ideation. If you or someone you know is suicidal, please contact your physician, go to your local ER, or call/text the National Suicide Prevention Lifeline at ...

When I was born in 1970, my life expectancy was only 17 years. But I was lucky to have parents, friends, and an incredible doctor who never let me believe the life I hoped for was out of reach.